Disorder Fact Sheets

Disorder Fact Sheets

Information About Parents’ Fact Sheets

The STAR-G Project has put together fact sheets about disorders commonly screened for by newborn screening. The fact sheets were written specifically for families that have received an initial diagnosis of one of the disorders and want to know more general information. They address issues and answer questions that are of particular concern to parents. Each fact sheet was written by a genetic counselor and reviewed by metabolic and genetic specialists.

You are welcome to view these fact sheets–however, please remember that the fact sheets were written for informational purposes only. The fact sheets should not be a substitute for professional medical advice, diagnosis or treatment.

Please Help!

If you have used the parent fact sheets above, please click on the link below to complete a short survey. Your responses will help us justify our work to update and maintain the information in the fact sheets. Thank you!

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