| About Expanded
Newborn Screening
How to Obtain Screening
For Parents
For Professionals
Information About Disorders
Financial, Ethical, Legal and Social Issues
(FELSI)
NBS Educational Tools......
Introduction
Message Library
Graphics Library
Disorder Descriptions
Guidelines
Legal Disclaimer |
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An Introduction to the Message and Graphics Libraries
How Do I Use the Message Library?
- The Message Library contains key pieces of information, or "messages"
that were:
- Adapted from a review of state brochures
- Requested by parents
- Key messages are:
- In a clickable list within our Message
Library
- Written using simple language at about the sixth grade reading level
- Not copyrighted
- Can be included or adapted to fit within your brochure
- To select a message for use in your brochure:
- Click on the category you want to use
- Highlight the message
- Copy it, then paste it into your document
- Messages may be adapted to meet the needs and requirements of your
state
What if I Want to Include Disorder-Specific Information?
- Parents may be overwhelmed by a description of each of the disorders
included in a screening panel
- However, if you would like to provide disorder-specific information
in your brochure, you may refer to our parent
fact sheets or our disorder descriptions
How Do I Use the Graphics Library?
- The Graphics Library contains key pictures and graphics that were:
- Adapted from a review of state brochures
- Requested by parents
- Graphics are in a clickable list within our Graphics
Library
- To select graphics for use in your brochure:
- Click on the category you want to use
- Select an image and right click on it
- Click on the "save" button to save the image to your computer
- Insert it into your document
Who Created the Message and Graphics Libraries?
- The Libraries were created by the Screening, Technology, and Research
in Genetics (STAR-G) Project
- The STAR-G Project is a multi-state project working to improve information
about newborn screening and genetic testing
- The project is supported by a grant from the Maternal and Child Health
Bureau, Health Resources and Service Administration Genetic Services
Branch, MCH Project #:1 H46 MC 00189-03
How Were the Message and Graphics Libraries Created?
The two Libraries were created using input from parents
- Parent input was collected through:
- 3 focus groups in Alaska
- 3 focus groups in California
- 12 focus groups in Hawaii
- 3 focus groups in Oregon
- 4 focus groups in Washington
- 1,413 completed surveys in California
- 633 completed surveys in Hawaii
- Parents were of varying ethnic, educational, and socio-economic backgrounds
- All messages and graphics were approved by participating parents and
our project Steering Committee
Where Can I Get More Information?
- For more information on our focus groups and surveys, please contact
us.
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