Newborn screening programs are a collaborative effort between public health departments, hospitals, government agencies and the parents of the children screened. As new technologies evolve, new challenges are faced. The goal of the STAR-G project was to examine the financial, ethical, legal and social issues posed by the use of tandem mass spectrometry in newborn screening.
The STAR-G Project officially ended in 2004, but the Western States Genetic Services Collaborative (WSGSC) continues to maintain and update the STAR-G website and parent fact sheets. For more information about the WSGSC, go to: www.westernstatesgenetics.org
If you would like copies of the Disorder Fact Sheets for Parents translated in Spanish, please click here.