Information About Disorder Fact Sheets

Fact sheets which review the disorders included on the newborn screening panel have been developed for families and professionals. The fact sheets for families were created by the STAR-G Project. These fact sheets review information that is of particular concern to parents. You can access these fact sheets by clicking on the button below.

The fact sheets for health care professionals were created by the American College of Medical Genetics and the American Academy of Pediatrics. These fact sheets, called ACT sheets, describe the short term actions a health professional may follow when caring for an infant who receives a positive newborn screening result. You can access these fact sheets by clicking on the button below.

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Looking for the fact sheets for health care providers that were developed for this project? You can click on the link below to go to our archived professional fact sheets for Primary Care Providers

ARCHIVED PROFESSIONAL FACT SHEETS FOR PRIMARY CARE PROVIDERS